Genosure

هذا الوصف ل Genosure

This project was inspired by the fact that we see newly diagnosed cases of sickle cell disease on a daily basis despite the supposed ongoing awareness.
This App was created when I discovered that adults were getting the wrong results, and therefore making the wrong choices.
We hope that soon, our app will reach all who live in endemic areas of the world.
We hope that people will seek help from the right places and be equipped with correct information.
Our Mission
- TO PROMOTE a carrier centered campaign
- TO ALERT carriers and everyone in affected areas to be sure of their and their partners’ genotypes
- TO ENSURE people get correct results.
- TO AID those living with sickle cell disorder via education, self-care and improve health-seeking attitude
- TO PREVENT new cases of sickle cell disease
Objectives
To ensure that people are sure of their genotypes and lead campaign against wrong results- (to be genosure).
To educate those affected by sickle cell disorder and assist them with self-care
To ensure that carriers are more involved in the campaign for prevention of new cases of sickle cell disorder
To educate carriers, those with sickle cell disorder and their care-givers
To give psychological support, remind patients of their routines and make record keeping easier
To ensure that young carriers within reproductive age groups are more involved in the campaign for the prevention of new cases and make them realise prevention is largely in their hands
To make clinical management easier via record keeping, symptom awareness, self-care and compliance with routines.
To get sickle cell disease patients more involved with and more educated about their own management
Disclaimer
This app should not replace your routine clinical visit or hospital management.